Northeast Florida Community Hospice

Call to Request Care: 904.407.6500

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“Building positive memories…letting kids be kids”

Our palliative care services are focused on preventing or relieving the physical and emotional distress of a serious illness or condition. Care is provided by a team of doctors, nurses, psychosocial specialist, clergy, child life and other specialists who work with the child’s physicians and the child and family’s social network. This support addresses emotional, social, psychological, spiritual, grief and loss needs of the child and family. The goal is to improve quality of life, including alleviating pain and symptoms and to help children, siblings and extended families live as normally as possible.

Our hospice services begin when a child has a life expectancy of six months or less and has discontinued aggressive curative treatment.  Hospice care is palliative care that, when needed, focuses on preparing the child and their family for death, supporting their needs through the final stages of life and providing bereavement services to the family.

Services available for all patients and their families include:

Programs and Services

  • Palliative Care

    Palliative care — pain and symptom management in the inpatient, outpatient and home settings that includes conventional Western and complementary and alternative medicines

    • Home visits by physicians, nurses, psychosocial specialists, child life, spiritual counselors and volunteers
    • Inpatient consultation for pain and symptom management
    • On-call services 24 hours a day/7 days a week
    • Seamless support as transitions occur between care settings, including home, hospital, child care and school
    • Ongoing collaboration and coordination with the child’s primary care and sub-specialty physicians and other community care/support providers
    • Medical supplies for children and families who have no other provision or payor source
    • Psychosocial and spiritual therapies
    • Resource planning and assistance
    • Child life interventions for patients and their siblings to promote effective coping through play, preparation, education and self-expression activities.
    • Respite care to provide short-term, temporary support for family caregivers
    • Education and advocacy to support the child and their family, including information and supportive visits with school teachers, counselors and classmates; primary care physicians and other care providers
    • Therapeutic and social group activities that enable interaction between children and families coping with the same or similar challenges and with other community members.
  • Hospice Care

    Hospice care—Palliative care services plus

    • Durable medical equipment and medications
    • Inpatient care provided at Wolfson Children’s Hospital
    • Short-term, in-home crisis care, focused on addressing the child’s comfort and symptom management
    • Attendance by appropriate team members at time of death, regardless of location
    • Anticipatory grief and bereavement support and counseling for the child and his/her family
  • Partners in Care: Together for Kids (PIC)

    Partners In Care Logo

    Community PedsCare provides specialized palliative care support services for children and adolescents up to the age of 21 through the PIC program. Children in the PIC program are able to continue receiving aggressive curative treatments while also benefiting from the overlay of support—from the point of diagnosis, with hope for a cure, through the provision of end-of-life care, if needed.

    PIC is a partnership between the Agency for Health Care Administration, the Florida Department of Health, and Florida Hospices and Palliative Care.

    PIC services provide comfort for both child and family, helping families get the information and support they need to make decisions that are best for their child and family. Families can access services, in addition to the medical services that they are already receiving, through the Children's Medical Services (CMS) Network.

  • Perinatal Program

    Perinatal program for parents whose unborn child is diagnosed with a life-limiting condition—assists families with a birthing plan, partners with the obstetrics and delivery team, assists in coordinating transfer home from the hospital, and offers a full range of physical, emotional and spiritual support to allow parents and siblings to spend quality time together.

  • University of Florida Pediatric Pain and Palliative Clinic

    University of Florida Pediatric Pain and Palliative Clinic is a physician’s referral only clinic for children with complex conditions requiring pain management and palliative care.

  • Transitions to Life

    A two-year grant awarded by The Sontag Foundation, Transition to Life is a program that supports youth as they transition from pediatric to adult healthcare providers and move toward independence.


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Living Large Each Day

Sometimes, simple pleasures mean the most; Community PedsCare offers events that gather families to share fun-filled hours—hunting Easter eggs, dressing as pirates or princesses, fishing by the lake.

Many of these events are coordinated by community volunteers such as the Community PedsCare Teen Advisory Committee.

 

Access to Care

Children with serious, potentially life-limiting conditions are eligible to receive our services. Referrals are received from the child’s primary physician.

If you or someone you know would like more information about the Community PedsCare program, please contact CommunityPedsCare@communityhospice.com.

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COFLBLU

American Hospital Association awarded Community Hospice a 2012 Circle of Life Citation of Honor for the innovative, community-focused and family-centric Community PedsCare program.