Our palliative care services are focused on preventing or relieving the physical and emotional distress of a serious illness or condition. Care is provided by a team of doctors, nurses, psychosocial specialist, clergy, child life and other specialists who work with the child’s physicians and the child and family’s social network. This support addresses emotional, social, psychological, spiritual, grief and loss needs of the child and family. The goal is to improve quality of life, including alleviating pain and symptoms and to help children, siblings and extended families live as normally as possible.
Our hospice services begin when a child has a life expectancy of six months or less and has discontinued aggressive curative treatment. Hospice care is palliative care that, when needed, focuses on preparing the child and their family for death, supporting their needs through the final stages of life and providing bereavement services to the family.
Programs and Services
Palliative care — pain and symptom management in the inpatient, outpatient and home settings that includes conventional Western and complementary and alternative medicines
Hospice care—Palliative care services plus
Community PedsCare provides specialized palliative care support services for children and adolescents up to the age of 21 through the PIC program. Children in the PIC program are able to continue receiving aggressive curative treatments while also benefiting from the overlay of support—from the point of diagnosis, with hope for a cure, through the provision of end-of-life care, if needed.
PIC is a partnership between the Agency for Health Care Administration, the Florida Department of Health, and Florida Hospices and Palliative Care.
PIC services provide comfort for both child and family, helping families get the information and support they need to make decisions that are best for their child and family. Families can access services, in addition to the medical services that they are already receiving, through the Children's Medical Services (CMS) Network.
Perinatal program for parents whose unborn child is diagnosed with a life-limiting condition—assists families with a birthing plan, partners with the obstetrics and delivery team, assists in coordinating transfer home from the hospital, and offers a full range of physical, emotional and spiritual support to allow parents and siblings to spend quality time together.
University of Florida Pediatric Pain and Palliative Clinic is a physician’s referral only clinic for children with complex conditions requiring pain management and palliative care.
A two-year grant awarded by The Sontag Foundation, Transition to Life is a program that supports youth as they transition from pediatric to adult healthcare providers and move toward independence.
Sometimes, simple pleasures mean the most; Community PedsCare offers events that gather families to share fun-filled hours—hunting Easter eggs, dressing as pirates or princesses, fishing by the lake.
Many of these events are coordinated by community volunteers such as the Community PedsCare Teen Advisory Committee.
Children with serious, potentially life-limiting conditions are eligible to receive our services. Referrals are received from the child’s primary physician.
If you or someone you know would like more information about the Community PedsCare program, please contact CommunityPedsCare@communityhospice.com.